Good Things Come in Small Packages.

by Stefanie Wilder-Taylor

 

Sadie, Sadie teeny tiny lady… I haven’t written a lot about Sadie and her eating, growing, issues lately. Sometimes, especially when things are going fairly well in that area, it slips to the back burner. A few months ago, Jon and I made a decision to try and stop feeding her through her g-tube overnight for awhile. We wanted to see if maybe taking a break for a few days might increase her appetite. When your child eats a couple of lint covered Cheerios she finds under the counter and then acts like “whoa, I couldn’t eat another bite” for the rest of the afternoon, you start to wonder if maybe she is just full. Once she’d been off the tube feeding for a few days her appetite did perk up. But at the end of our week long experiment she’d lost a few ounces instead of the gain we hoped for.

 

Rather than go back to the tube, on the suggestion of Sadie’s nutritionist, we decided to try the appetite stimulant, Periactin. Periactin is an antihistamine that has the added benefit of causing people to eat like they’re starving, stoned and premenstrual. It’s given to cancer patients and anorexics. The rest of us should probably stick with Benedryl. Within one day on the medicine, Sadie was eating more than we’d ever seen her. For maybe the first time ever, we actually heard her ask for more. More! The word more was so beautiful, so stunning and unexpected it brought tears to my eyes. She was like a completely different baby and we relaxed for the first time since she was born.

 

The scale moved slowly from eighteen pounds (Worry! Dread!) to twenty pounds (Happiness! Celebration!) and then she seemed to hit a plateau. It doesn’t seem to matter how many Carnation Instant Breakfast drinks she sucks down, the scale refuses to budge. But here’s the thing: She eats, she’s happy and energetic, and actually at only 30 inches tall she’s in perfect proportion. She even has some adorable cellulite - a miniature, dimply little butt –it’s delightful!

 

This doesn’t mean that Sadie’s lack of gain isn’t a concern at all, it is. She’s still way too small for her age and her endocrinologist isn’t hopefully that her short stature will correct itself even though she’s eating more. Sometimes when I hold up a pair of pants for a 12-month-old that fit Sadie perfectly even though she just turned two I get bummed out. When I see that Sadie can’t walk up a step that is a piece of cake for her sister to navigate, my heart hurts a little bit. Her endocrinologist said that without growth hormones she may not be taller than 4’10”. I wonder if she’ll be teased.

 

klober85
08.05.10

Do not worry about her being small. I am 25 and 4'11" tall. I have a heart condition that I was born with. (Pretty sure thats why I'm short and also no one else in my family is insanely tall, I just happen to be the shortest) And growing up my height was basically 2 years behind. So in 3rd grade I looked like a 6 year old. And yes I did get made fun of. A LOT. Growing up, it was the kids at school. But in 3rd grade I punched a kid in the face for calling me names, which when the school called and told my mom, she said "so? she has brothers. What do you expect?". My whole life my own brother would make fun of me. In fact my entire family makes fun of me to this day. But here is the thing...this has only made me a stronger person. I am able to laugh at myself and be proud of being short. And laugh and point out when I have to do certain things a particular way because of my stature. Like having my drivers seat all the way forward so I can reach the pedals. Or having a step stool always at hand in my kitchen. All in high school my nick name was Shorty, even friends parents called me Shorty. Like I said, I really wouldn't worry about her being short. She sounds like she has a wonderful family that loves her as much as mine loves me. And she is one lucky gal to to have a twin sister who I bet will be looking out for her every day of her life. Embrace her stature and love her because she is healthy and will probably do great things.~Shorty :)

laura_r
12.08.09

I know every experience is different, but don't stress about size. My sister is 4'10". She's 30 years old and a chiropractor, and doing very well. Her pediatrician suggested growth hormones when she was young, but my parents decided her size would be her size. A friend of hers got the growth hormones and (30 years later) is having issues that are tied back to it.

nabbie
12.01.09

I STILL say Sadie will kick-ass in the growing dept. You will see her shoot up. Even if she does get to be 6 ft tall, she will be Sadie size. And that will be good enough for you. She will be smart, and funny and the best people person! She will be unforgettable to everyone who meets her. A diamond in the rough! Sadie Sadie super duper lady is what they will be calling her years fom now...you wait and see. Shannon