Ain’t Nothin’ But a G-tube Thing.

I think when you first have a baby, the common experience is to worry incessantly that something is wrong or could go wrong with your new little person whom you have no experience taking care of. I also think the common experience is that nothing major ever does go wrong. But sometimes it does. My twin daughter, Sadie stopped growing at about twenty-eight weeks’ gestation and although I knew she’d probably weigh not much more than two pounds, every doctor said she’d be fine. "It’s the best case scenario" my high risk doc told me referring to Sadie’s head growth. "Her brain is getting the nutrients it needs so that when she is delivered and starts eating the rest of her body can catch up." And that’s how it should’ve worked. But it didn’t.

 

From the time she came home from the NICU, she couldn’t have been less interested in eating. When presented with a bottle she fought it by thrashing her head wildly about like it was filled with battery acid and not yummy yummy formula. Meanwhile her sister, Matilda, drooled when she heard the microwave beeping like a cat responds to hearing a can opener. She never met a bottle of formula she didn’t want to devour. As you can imagine, Mattie gained weight like a speeding train and Sadie barely put on enough to survive – eventually earning the diagnosis, failure to thrive or FTT.

 

My husband and I tried everything to get her to drink more formula. We bribed her with Baby Einstein, extra swing time, chewing on an old shoe (come on, it’s hard to bribe a baby) – nothing seemed to work. When she started solid food, she ate a bit better but never enough to put some baby fat on her tiny behind. We consulted doctor after doctor, got tons of advice, implemented many of the suggestions yet Sadie remained and still remains way too small for her age.

 

A few weeks ago, it was recommended by our pediatric GI that we place a g-tube into our sweet little otherwise healthy baby’s stomach. "A TUBE? WHY? There must be another way! There’s got to be another way. Only babies with something wrong with them need something as drastic as a tube to eat! Our baby is not like that. She’s just small" I said to our doctor, to my husband, our nutritionist anyone who would listen. "I can do more! I can work full-time at just getting her to eat. I’ll treat it like a job. A real job, I won’t slack off! I won’t pretend to work when I’m not really working like I usually do. I’ll punch in at 7:00 a.m. and not let myself off the clock until 7:00 p.m. –hey if nurses can work those hours so can I."

 

"But you are already doing that and she’s still not putting on the weight she needs to develop properly" the doctors would say back to me –not understanding that they were calling me a failure, a bad mother, a mom who couldn’t take care of her child’s most basic need –eating.

 

It took me a few weeks for it to sink in that it’s not about me. It’s about Sadie. And there is something wrong with her. But luckily for Sadie it’s something that can be improved by medical intervention.

 

aasmith2000
02.25.09

Hope everything has settled down! I know that when we got home from the hospital and a nurse met us at the house to go over everything, I wanted to scream! But of course, you can't. You just suck it up and march forward. Olivia has been on the g-tube for almost 2 years, but eats more and more everyday - daycare, of all things, has helped - peer pressure can be a good thing sometimes! Good luck with your situation!

jenlingin
12.17.08

this brings tears to my eyes. i undertand all of these feelings.

Writermom
12.17.08

What is what? She is recovering. And also getting enough nutrients to grow. She's put on 4 oz in 4 days.

kellymiller500
12.17.08

So what is it? Was it? Is she recovering?